SECURE-DERM is a close international collaboration between clinicians, scientists and patients to collect anonymized data concerning patient outcomes as a result of the COVID-19 pandemic.
The SECURE-DERM initiative consists of two physician facing registries, SECURE-Alopecia and SECURE-AD. In addition, there is a patient survey, SECURE-AD Patient Survey that allows patients with atopic dermatitis to report their experiences of having had COVID-19 and/or COVID-19 vaccinations.
COVID-19 has created an unprecedented global public health emergency. Most patients exhibit mild-to-moderate symptoms and recover without consequences, however around 15% develop severe symptoms needing hospital care, and some patients have a prolonged illness or develop “long-COVID”. There is an urgent need to better understand the risk factors leading to poorer outcomes in people with alopecia or atopic dermatitis who are treated with or without systemic medication.
There is also a need to better understand how people with atopic dermatitis tolerate COVID-19 vaccinations, especially those that are on systemic medication, or who have concerns regarding efficacy and side effects of the vaccination. Additional questions regarding COVID-19 vaccination were added in June 2021 in response to concerns about vaccinations voiced by patients and international atopic dermatitis organisations.
The SECURE-DERM project offers to link the international clinical, scientific and public health dermatological communities with the common aim of gathering observational data on COVID-19 outcomes in alopecia and atopic dermatitis on a global scale.
SECURE-AD and SECURE-Alopecia are web-based registries for clinicians to report COVID-19 outcomes in atopic dermatitis and alopecia respectively. Both registries have received robust support from major international dermatological professionals and patient organisations. We now encourage clinicians worldwide to participate in this collaboration.
This collaboration has been sponsored by National & International Skin Registry Solutions CLG, Dublin Ireland (a registered charity RCN 20205667).